Disabled children's Information & Database
Welcome to Sefton's Disabled Children's Information and
Database notice board
If you would like to share information on events with parents
and colleagues then please contact the Database Co-ordinator and we will happily post
it here on the noticeboard.
The publication of Information Networking has
changed. Started in March 2010 you will receive
the "Aiming
High newsletter" and it will provide information on
all the four strands of Aiming High including Short Breaks,
Disabled Children's Access to Childcare, Parent Forum, Transitions.
Information that would usually appear in Information
Networking will be included.
Dates for distribution will be March, June and October. If you
have an email address that we could use please let us know. It
is more cost effective to email a copy which can still keep
and stored for future reference but enables us to reduce the
cost of producing paper copies and the cost of postage. The
deadline for any articles is the middle of September, or earlier of
possible. The next issue will be distributed around the 15th
October.
The National Carers Strategy is a plan for
carers.
It has
5 main things that will be done to help carers.
The Department of Health want to know
your ideas for how they can do these things in the best way
for carers.
If you go online there are a few questions
that they would like carers to answer/contribute to the
strategy.
Have you ever wanted to learn sign Language?
Maureen Doyle from practice makes perfect runs courses in the
Southport area at a very reasonable cost ( cheap) for more
information see their website of practice makes
perfect
Parent Forum P.A.C.T.S Parents and Carers Team Sefton
The next meetings will take place on:
Thursday 9th September at Netherton
Community Centre
Wednesday 6th October at Parenting
2000 in Southport
10am-1pm lunch included
If you would like to know more about the forum or join please
contact Sue Neil at Sefton Carers Centre on 0151 288 6060 or you
can print,complete and return this form
to Sue
Susan.Neal@carers.sefton.gov.uk
Climb National Information Centre for Metabolic
Diseases
Is the only charity/organisation to help families with over 700
metabolic diseases. Our annual conference which aims to
educate all about metabolic disease with information about
diagnosis, care, support, treatment and other issues, istaking
place on Saturday 9th October, 2010 at the Copthorn Hotel,
Dudley,
West Midlands.
This year we are covering the FODS (fatty oxidation disorders
including MCADD which is now being tested for at birth in Enlgand)
and organic acidaemias. All families and professionals are welcome
to hear the Specialists talk about treatments, updates, the role of
the pharmacy, crisis management and also to hear our family speaker
talk about her experiences with MCADD.
Young people's jewellery workshop and trip to Dudley Art Gallery
is provided with a cr.ehe for the under 5s. To enable
everyone to come costs only cover refreshments for the day. For our
paid up members £10 for the day. For non-members £15 for the
day.
For more information or to book a
place please contact Pam Davies the Family Services Manager phone
0800 652 3181 for more
Merseyside Sports Partnership
Have produced a
sports directory for merseyside which can be accessed
online
Carers Identification and Support Bill
There was a first reading in parliament on the 7th
July and the bill proposes making it compulsory for GP's and
schools to identify carers and young carers. The second
reading will be in November. If you would like to
know more you can use this link
Family Fund
From April 2010 the family fund will consider grant applications
where the total family's income from all sources, including net
earnings and benefits is up to £25,000. For further information see
the Contact a Family website.
Airport Awareness Booklet
We have put this information in the newsletter but in case you
missed it. Manchester airport has produced a booklet for
parents and carers of children on the autisitic spectrum. More
information can be found on the
Manchester Airport website. (external
pdf)
Recommended Websites
Several parents and professionals have recommended the following
websites:
Last Updated on 8/24/2010